News

March 2022 Newsletter

In the Spotlight

Remembering Dr. Paul Farmer

Dr. Paul Farmer was the Kolokotrones University Professor, head of the Department of Global Health and Social Medicine in the Blavatnik Institute at Harvard Medical School, chief of the Division of Global Health Equity at Brigham and Women’s Hospital, and co-founder and chief strategist of Partners In Health. Dr. Farmer passed away suddenly on February 21, 2022, in Rwanda.

Paul was a public health luminary, true humanitarian, and brilliant scholar. He made a lasting impact on social justice in global health. Paul was a dear friend of the MRCT Center and we will strive to honor his legacy in our work.


Equity by Design in Clinical Research: Cancer Trials virtual training series recap

The MRCT Center hosted, in partnership with the Center for Cancer Equity and Engagement, Dana-Farber/Harvard Cancer Center, a six-part training series entitled “Equity by Design in Clinical Research: Cancer Trials.” Each module consisted of a 45-minute video lecture and 45 minutes of an interactive discussion session with experts in the field. Over 450 people were registered. All course registrants have until May 13 to finish viewing recordings and to complete their evaluation forms for credit. After May 13, all course materials will be made publicly available on the MRCT Center website (not for CME credit). More


Return of Individual Research Results (IRR) Website Launch webinar

This one-hour webinar will be moderated by MRCT Center Project Manager Lisa Murray and include a review of IRR and its importance, patient advocate Jamie Tyrone describing her own lived experience with IRR, and a live demonstration of the new tools and website.

The webinar will be hosted on March 24th from 1 pm-2 pm ET. Register now!

Learn more about our work on returning individual research results. 


The second session of the MRCT Center Advancing International Pediatric Clinical Research webinar series: Informing the Future from COVID-19 Lessons Learned was held on February 2, 2022.

Webinar recordings and slides are now available. Subscribe for updates of future webinars in this series. MORE

Learn more about the MRCT Center Promoting Global Clinical Research in Children project.


This video, produced by Dr. Gianna “Gigi” McMillan in collaboration with the MRCT Center, features 3 young people from 3 continents, offering their thoughts on what researchers who work with young people should know.

This video, produced by International Children’s Advisory Network (iCAN) in collaboration with the MRCT Center, showcases young people from around the globe who have been involved in medical care and clinical research sharing some thoughts on what is important about including and listening to young people in clinical research.

MRCT Center welcomes a new sponsor!

The MRCT Center welcomes Mayo Clinic as a new Executive Committee member. Mayo Clinic is a nonprofit organization committed to clinical practice, education, and research, providing expert, whole-person care to everyone who needs healing. The MRCT Center is partnering with the Center for Clinical and Translational Science (CCATS), which is a central hub for institutional advancement of research and education at Mayo Clinic. The center provides tools and expert consultation to support every aspect of medical research.
 
Learn more about Mayo Clinic – Center for Clinical and Translational Science
Learn more about MRCT Center sponsors
Learn more about becoming an MRCT Center sponsor


PRESENTATIONS

On Thursday March 3, 2022 from 5:30pm-7:30pm EST: MRCT Center Program Manager Willyanne DeCormier Plosky, DrPH will be presenting on “Inclusion of People with Disabilities in Clinical Trials” at the 4th Annual Clinical Research Nurse meeting being hosted by the MGH Clinical Research Nurse Collaborative, the MGH Munn Center for Nursing Research and the Boston-New England Chapter of IACRN. The program for the meeting will focus on educating a community of CRNs on the importance of diversity, equity, and inclusion in clinical research, with a focus on clinical research nursing. Register now


PUBLICATIONS

JANUARY 31, 2022: MRCT Center Faculty Director, Barbara Bierer, with Executive Director, Sarah White, and Program Manager, Sylvia Baedorf Kassis authored a manuscript “Developing a consensus-driven, plain-language clinical research glossary for study participants and the clinical research community” in the Journal of Clinical and Translational ScienceRead now

FEBRUARY 4, 2022: MRCT Center Program Manager, Sylvia Baedorf Kassis wrote about “How To Use Plain Language in Clinical Research Communications” in the Institute for Healthcare Advancement (IHA) blog. Read now

FEBRUARY 22, 2022: The MRCT Center submitted public comments to the National Institutes of Health (NIH) “Request for Information on Proposed Updates and Long-Term Considerations for the NIH Genomic Data Sharing Policy.” The MRCT Center appreciates the NIH’s efforts to update its policy to maintain currency with evolving technology and understanding. Detailed comments and suggestions can be found here. Read more