{"id":303,"date":"2019-01-04T11:44:31","date_gmt":"2019-01-04T16:44:31","guid":{"rendered":"https:\/\/dev.mrctcenter.org\/health-literacy\/?page_id=303"},"modified":"2023-06-27T18:00:16","modified_gmt":"2023-06-27T18:00:16","slug":"participantsandpublicresources","status":"publish","type":"page","link":"https:\/\/dev.mrctcenter.org\/health-literacy\/instructional-resources\/participantsandpublicresources\/","title":{"rendered":"Participants and Public"},"content":{"rendered":"<section class=\"wpb-content-wrapper\"><p>[vc_row][vc_column][vc_column_text css=&#8221;.vc_custom_1570381243058{margin-bottom: 0px !important;padding-bottom: 16px !important;}&#8221;]<\/p>\n<h1>Research participants have a right to understand<\/h1>\n<p>[\/vc_column_text][vc_row_inner css=&#8221;.vc_custom_1567894464660{margin-top: 0px !important;margin-bottom: 0px !important;padding-top: 0px !important;padding-bottom: 0px !important;}&#8221;][vc_column_inner][vc_column_text css=&#8221;.vc_custom_1571587744227{margin-bottom: 0px !important;padding-bottom: 16px !important;}&#8221;]<img loading=\"lazy\" decoding=\"async\" class=\"wp-image-1587 alignright\" src=\"https:\/\/dev.mrctcenter.org\/health-literacy\/wp-content\/uploads\/sites\/3\/2019\/10\/resources-public-participants-2.jpg\" alt=\"research participants\" width=\"500\" height=\"500\" srcset=\"https:\/\/dev.mrctcenter.org\/health-literacy\/wp-content\/uploads\/sites\/3\/2019\/10\/resources-public-participants-2.jpg 800w, https:\/\/dev.mrctcenter.org\/health-literacy\/wp-content\/uploads\/sites\/3\/2019\/10\/resources-public-participants-2-300x300.jpg 300w, https:\/\/dev.mrctcenter.org\/health-literacy\/wp-content\/uploads\/sites\/3\/2019\/10\/resources-public-participants-2-150x150.jpg 150w, https:\/\/dev.mrctcenter.org\/health-literacy\/wp-content\/uploads\/sites\/3\/2019\/10\/resources-public-participants-2-768x768.jpg 768w, https:\/\/dev.mrctcenter.org\/health-literacy\/wp-content\/uploads\/sites\/3\/2019\/10\/resources-public-participants-2-250x250.jpg 250w\" sizes=\"(max-width: 500px) 100vw, 500px\" \/>It is important for the general public and research participants to have a correct understanding of the purpose of research, the role they play as participants, and what they should expect to happen in a clinical trial.<\/p>\n<p>Participants have the right to be given information about clinical research that is designed for their understanding.\u00a0 And it is the responsibility of the clinical research community to ensure the recipients of information understand what they have been told.<\/p>\n<p>This section of the website includes resources to support research participants:<\/p>\n<ul>\n<li><span style=\"color: #0a0730;\"><strong>Research Participants&#8217; Bill of Rights<\/strong><\/span><\/li>\n<li><strong><span style=\"color: #0a0730;\">Other Resources to Support Research Participants<\/span><\/strong><\/li>\n<\/ul>\n<p>[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][\/vc_column][\/vc_row][vc_row full_width=&#8221;stretch_row_content&#8221; css=&#8221;.vc_custom_1570494113046{padding-top: -10px !important;padding-bottom: -10px !important;}&#8221;][vc_column][vc_empty_space][vc_column_text css=&#8221;.vc_custom_1571596575014{padding-top: 10px !important;padding-right: 10px !important;padding-bottom: 10px !important;padding-left: 10px !important;background-color: #efefef !important;}&#8221;]<\/p>\n<h2 style=\"text-align: center;\">Research Participants&#8217; Bill of Rights<\/h2>\n<p>[\/vc_column_text][\/vc_column][\/vc_row][vc_row full_width=&#8221;stretch_row&#8221;][vc_column][vc_column_text]The Participants Bill of Rights* has been developed especially for people who want to learn more about what to expect when deciding whether to join a clinical research study.[\/vc_column_text][vc_row_inner css=&#8221;.vc_custom_1570493970753{margin-top: 20px !important;margin-right: 20px !important;margin-bottom: 20px !important;margin-left: 20px !important;border-top-width: 1px !important;border-right-width: 1px !important;border-bottom-width: 1px !important;border-left-width: 1px !important;background-color: #99ccff !important;border-left-style: none !important;border-right-style: none !important;border-top-style: none !important;border-bottom-style: none !important;}&#8221;][vc_column_inner][vc_column_text]Use this video and the related flyer to raise awareness and educate about clinical research.[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][\/vc_column][\/vc_row][vc_row][vc_column width=&#8221;1\/6&#8243;][\/vc_column][vc_column width=&#8221;4\/6&#8243;][vc_video link=&#8221;https:\/\/www.youtube.com\/watch?v=s8b8SBhxW6w&#8221; align=&#8221;center&#8221;][vc_btn title=&#8221;DOWNLOAD A PDF OF THE BILL OF RIGHTS&#8221; style=&#8221;outline-custom&#8221; outline_custom_color=&#8221;#000000&#8243; outline_custom_hover_background=&#8221;#d6e7ff&#8221; outline_custom_hover_text=&#8221;#000000&#8243; size=&#8221;lg&#8221; align=&#8221;center&#8221; button_block=&#8221;true&#8221; link=&#8221;url:https%3A%2F%2Fdev.mrctcenter.org%2Fresource%2Fhealth-literacy-resources-by-role-participants-and-public-research-participants-bill-of-rights%2F|target:_blank&#8221; css=&#8221;.vc_custom_1687888814334{background-color: #99ccff !important;}&#8221;][vc_column_text]<\/p>\n<h6>*This material was adapted from pamphlets developed by the New England Research Subject Advocacy Group, with contributions from the affiliated universities and academic healthcare centers of member institutions. For more information see:\u00a0<a href=\"https:\/\/catalyst.harvard.edu\/services\/rsa\/\" target=\"_blank\" rel=\"noopener noreferrer\">https:\/\/catalyst.harvard.edu\/services\/rsa\/<\/a><\/h6>\n<p>[\/vc_column_text][\/vc_column][vc_column width=&#8221;1\/6&#8243;][\/vc_column][\/vc_row][vc_row full_width=&#8221;stretch_row_content&#8221; css=&#8221;.vc_custom_1570494113046{padding-top: -10px !important;padding-bottom: -10px !important;}&#8221;][vc_column][vc_column_text css=&#8221;.vc_custom_1571597060519{padding-top: 10px !important;padding-right: 10px !important;padding-bottom: 10px !important;padding-left: 10px !important;background-color: #efefef !important;}&#8221;]<\/p>\n<h2 style=\"text-align: center;\">Other Resources to Support Research Participants<\/h2>\n<p>[\/vc_column_text][\/vc_column][\/vc_row][vc_row][vc_column][vc_row_inner][vc_column_inner width=&#8221;3\/4&#8243;][vc_column_text]The <a href=\"https:\/\/catalyst.harvard.edu\/services\/rsa\/\" target=\"_blank\" rel=\"noopener noreferrer\">Harvard Catalyst Research Subject Advocacy Program<\/a>\u00a0continues to develop a series of health literate brochures to support participants\u2019 learning about clinical research.<\/p>\n<p>These brochures are useful for discussing the details of research participation with potential and enrolled participants, including risks, benefits, specific procedures, and research protections.[\/vc_column_text][\/vc_column_inner][vc_column_inner width=&#8221;1\/4&#8243;][vc_cta h2=&#8221;&#8221; h4=&#8221;Learn more about their process here:&#8221; style=&#8221;custom&#8221; add_button=&#8221;bottom&#8221; btn_title=&#8221;LEARN MORE&#8221; btn_style=&#8221;outline-custom&#8221; btn_outline_custom_color=&#8221;#000000&#8243; btn_outline_custom_hover_background=&#8221;#d1e6ff&#8221; btn_outline_custom_hover_text=&#8221;#000000&#8243; btn_align=&#8221;center&#8221; btn_link=&#8221;url:https%3A%2F%2Fwww.cambridge.org%2Fcore%2Fjournals%2Fjournal-of-clinical-and-translational-science%2Farticle%2Fdevelopment-of-a-plainlanguage-library-of-educational-resources-for-research-participants%2F55A05866C8E3EF81181A311D9382FAEC||target:%20_blank|&#8221; css=&#8221;.vc_custom_1571605701443{background-color: #99ccff !important;}&#8221; custom_background=&#8221;#99ccff&#8221; custom_text=&#8221;#000000&#8243;][\/vc_cta][\/vc_column_inner][\/vc_row_inner][\/vc_column][\/vc_row][vc_row][vc_column][vc_column_text]Below are some examples of topics covered in the brochures, <a href=\"https:\/\/catalyst.harvard.edu\/services\/rsa\/\" target=\"_blank\" rel=\"noopener noreferrer\">click here<\/a> to see the full series and download copies.[\/vc_column_text][vc_row_inner][vc_column_inner width=&#8221;1\/3&#8243;][vc_single_image image=&#8221;1283&#8243; img_size=&#8221;full&#8221; onclick=&#8221;custom_link&#8221; img_link_target=&#8221;_blank&#8221; link=&#8221;https:\/\/catalyst.harvard.edu\/services\/rsa\/&#8221; el_class=&#8221;zoom&#8221;][\/vc_column_inner][vc_column_inner width=&#8221;1\/3&#8243;][vc_single_image image=&#8221;1284&#8243; img_size=&#8221;full&#8221; onclick=&#8221;custom_link&#8221; link=&#8221;https:\/\/catalyst.harvard.edu\/services\/rsa\/&#8221; el_class=&#8221;zoom&#8221;][\/vc_column_inner][vc_column_inner width=&#8221;1\/3&#8243;][vc_single_image image=&#8221;1285&#8243; img_size=&#8221;full&#8221; onclick=&#8221;custom_link&#8221; img_link_target=&#8221;_blank&#8221; link=&#8221;https:\/\/catalyst.harvard.edu\/services\/rsa\/&#8221; el_class=&#8221;zoom&#8221;][\/vc_column_inner][\/vc_row_inner][\/vc_column][\/vc_row][vc_row full_width=&#8221;stretch_row&#8221; css=&#8221;.vc_custom_1571597119182{background-color: #e3e3e3 !important;}&#8221;][vc_column width=&#8221;1\/3&#8243;][vc_single_image image=&#8221;1458&#8243; img_size=&#8221;full&#8221; alignment=&#8221;center&#8221;][\/vc_column][vc_column width=&#8221;2\/3&#8243;][vc_column_text]<\/p>\n<h3 class=\"wpb_wrapper\"><strong><span style=\"color: #910532;\">We welcome your feedback!\u00a0<\/span><\/strong><strong><span style=\"color: #910532;\">Our health literacy site is always evolving and we encourage visitor input to help us enhance and improve this important resource.<\/span><\/strong><\/h3>\n<p>[\/vc_column_text][vc_column_text]<\/p>\n<h3 class=\"wpb_wrapper\"><strong><span style=\"color: #910532;\">Please email <a href=\"mailto:MRCT@bwh.harvard.edu\">MRCT@bwh.harvard.edu <\/a>with recommendations of additional resources that support health literacy integration into clinical research.<\/span><\/strong><\/h3>\n<p>[\/vc_column_text][\/vc_column][\/vc_row]<\/p>\n<\/section>","protected":false},"excerpt":{"rendered":"<p>[vc_row][vc_column][vc_column_text css=&#8221;.vc_custom_1570381243058{margin-bottom: 0px !important;padding-bottom: 16px !important;}&#8221;] Research participants have a right to understand [\/vc_column_text][vc_row_inner css=&#8221;.vc_custom_1567894464660{margin-top: 0px !important;margin-bottom: 0px !important;padding-top: 0px !important;padding-bottom: 0px !important;}&#8221;][vc_column_inner][vc_column_text css=&#8221;.vc_custom_1571587744227{margin-bottom: 0px !important;padding-bottom: 16px !important;}&#8221;]It is important for the general public and research participants to have a correct understanding of the purpose of research, the role they play as participants, and what [&hellip;]<\/p>\n","protected":false},"author":5,"featured_media":0,"parent":63,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"template-sub.php","meta":{"footnotes":""},"class_list":["post-303","page","type-page","status-publish","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/dev.mrctcenter.org\/health-literacy\/wp-json\/wp\/v2\/pages\/303"}],"collection":[{"href":"https:\/\/dev.mrctcenter.org\/health-literacy\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/dev.mrctcenter.org\/health-literacy\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/dev.mrctcenter.org\/health-literacy\/wp-json\/wp\/v2\/users\/5"}],"replies":[{"embeddable":true,"href":"https:\/\/dev.mrctcenter.org\/health-literacy\/wp-json\/wp\/v2\/comments?post=303"}],"version-history":[{"count":1,"href":"https:\/\/dev.mrctcenter.org\/health-literacy\/wp-json\/wp\/v2\/pages\/303\/revisions"}],"predecessor-version":[{"id":2212,"href":"https:\/\/dev.mrctcenter.org\/health-literacy\/wp-json\/wp\/v2\/pages\/303\/revisions\/2212"}],"up":[{"embeddable":true,"href":"https:\/\/dev.mrctcenter.org\/health-literacy\/wp-json\/wp\/v2\/pages\/63"}],"wp:attachment":[{"href":"https:\/\/dev.mrctcenter.org\/health-literacy\/wp-json\/wp\/v2\/media?parent=303"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}